Ryan was here ...



This is my assemblage of not-so-sweet nothings, consisting of my feelings at losing my two-day-old son, Ryan David, to congenital heart defects, and to celebrate the arrival of Ryan's healthy little sister, Megan Elizabeth.




Wednesday, July 22, 2009

Yes, I'm still here

But, I'm a little lost again and have feared harsh scrutiny over my feelings, so I've kept mum instead of coming here to vent.

It's just a little more than two weeks till Ryan's fourth birthday - or, what should've been his fourth birthday - and I still feel so lost and confused. Megan has brought so much needed joy into my life, but I'm still longing for what I don't have.

I've also been doing more self-reflection and trying to figure out why I feel the way I do about certain aspects of my life. I need and deserve peace and resolution and I'm determined to find it. I may have to delve into the murky places in my past and within myself to find those answers, but dammit, I cannot go on like this for the next however-many years.

I guess I'll always be a work in progress.

Labels:

Tuesday, April 21, 2009

How COULD they?!

I've been sitting on some powerful emotions for the last month regarding a situation that I view as inexcusable and reprehensible, and I need to rant and generally be angry about another's actions. I try really hard not to judge others, but in this case, I can't put my very personal feelings aside and overlook what they did.

I "met" a woman about a year ago through one of the online infant loss forums I frequent, and my heart immediately went out to her last month when I learned that her daughter was born too soon and passed after just six days. Her infant son had died just last August and she had experienced several second-trimester losses before that.

As much as my heart aches over losing Ryan, I've never been able to fathom what multiple losses would be like and can't even imagine the deep pain that comes with saying goodbye to more than one baby. So, to think that a person out in the vastness of cyberspace would masquerade as a mom to only heavenly babies makes my stomach turn.

Yes, someone pretended to be a member of the Dead Baby Club. And, that person preyed on the emotions of legitimate mourning moms and moms-to-be on multiple online forums by peddling her fabricated stories of woe and loss. She was pretty convincing for a while, so it's no wonder it took so long to uncover the truth.

As a card-carrying member of DBC, I'd never question another person's tale of loss and would assume their pain and grief was real and heart-felt, just as my own is. And, to question a story of loss seems innately wrong to me, so I gave the benefit of the doubt and thanked my lucky stars that I hadn't been dealt THAT tough hand.

This woman (or so I'm assuming) has seemingly disappeared from these online forums, but not without a widespread trail of confused hearts and angry minds. Why on earth would someone WANT to be a dead baby mama, when those of us who had to say goodbye to our beloved babies would give anything to cuddle and caress our little ones just one minute longer? It's infuriating that someone would pretend to have walked in the same shoes as me and many of my friends - and take advantage of our broken hearts.

We moms in mourning don't have a lot of spare good thoughts and emotion to dole out to just anyone. We're forever nursing our own deep wounds, but we rally ourselves together and dig deep into our souls to offer all we do have to someone we can relate to - someone who tragically loses child after child.

To find out that it was all a joke is such an insult. I shed real tears for this woman and the baby that supposedly died. I said prayers for strength and healing for her, and prayers of thanks for myself that despite losing Ryan, I have Megan in my life. Yes, I was a fool to believe such a far-fetched story, but some wolves wear pretty convincing sheep's clothing.

I hope that person accomplished whatever it was they were trying to do. When I first discovered the real truth, I felt badly for this woman, because I wondered if at one point she had experienced a real loss and never truly recovered emotionally. I can see that as a a possibility, but, frankly, my angered mind doesn't care about the logic behind the misguided actions. She lied and toyed with my emotions and I don't take kindly to that. And, this experience has planted a seed of doubt in my mind that I cannot squash - that others will come down the pike and pretend to have lost a baby only to gain attention and be pitied by others.

Yes, I'm having a difficult time reconciling all of this in my mind and letting it go. It's difficult to do when you've become emotionally invested and can't just sever the powerful lifeline that leads to those feelings. It's not a switch that I can quickly turn off and forget about. I wish it were that easy, though ...

Labels: ,

Monday, March 09, 2009

Remembering an angel



Please take a moment and visit Kristin to let her know you're remembering her angel, Thomas, and wishing him the sweetest of fourth birthdays.

Happy birthday, Thomas Joseph. You're missed so much today - and every day. XO

Labels:

Friday, March 06, 2009

Erasing the past?

For quite a while now, I've considered retouching my favorite picture of Ryan - the close-up that highlights his beautiful blue eyes and his tousled blonde locks. That picture, to me, captured Ryan in all his innocence, despite the complex world that enveloped him.

I see beyond all of the contraptions that were thrust upon him almost from the moment he took his first breath. Yes, I see the jungle of surgical tape, tubes and wires, too, but they aren't the only things I see anymore. But, the harsh reality is that all those things were an enormous part of his existence. Without them, we would've had even less time together.

There are times, though, that I wish I had a "normal" baby portrait of him on the wall - one that's free of the complicated web of lifelines that surrounded him during his short life. One where the majority of his precious face isn't covered in surgical tape - or one that's minus the tape, but where he's still alive.

God, the things we would've done differently, had we known that those 54 hours would be all the time we'd ever have. Sometimes, even after all the time that's passed, it's difficult to wrap my head around all of it and believe that it actually happened. That it actually happened to my beloved little Peanut.

Getting back to my original dilemma ... I don't know how I feel about retouching that photo. As much as I would love to have an uncomplicated, innocent picture of him to savor, to take those things away would be like trying to erase part of the past. Obviously, I'll never forget all the machines and monitors that sustained his little life. But, do I need to actually see those reminders every time I look at Ryan's face and relive all that happened?

Would erasing those things make him more of a fantasy rather than real, since the Ryan I knew and loved was tethered to countless machines. Or, does it matter at all. Really, does it?

Monday, February 23, 2009

My favorite "McBealism"

In the mid-'90s, one of my favorite TV shows was Ally McBeal. I can't put a finger on just one thing I loved about the show because I loved all of it. The sometimes silly and poignant McBealisms. The dancing baby. The wild scenarios playing out in Ally's over-active imagination. Her colleagues. Her cases. All of it.

But, I'll always remember one particular episode, where Ally responds to a colleague questioning the importance of Ally's problems:

“You know what makes my problems bigger then everyone else's? They're mine.”

I immediately connected with Ally's response, both from my own personal problems and at how I view others' strife. I think all of us are somewhat self-centered when it comes to our problems, regardless of how compassionate or sensitive we are to others' needs. And, when it comes down to it, if you don't look out for yourself, who will? So, I certainly understand how easy it is at times to be swept away by your problems, possibly overlooking those around you who are in need of a helping hand or sympathetic ear.

I'm not without fault. I've sometimes felt my problems were THE most important thing in the universe. But, to anyone else who isn't directly impacted by my problems, they don't see the same sense of urgency I see. And, the same may be true when I'm looking at someone else and their problems. If it doesn't directly affect me, I might not feel as passionate as the problem's owner does.

To each person - in their world - their problems may be larger than life. They may be all-consuming. And, those problems may be the only things those people can truly call their own in a world where we actually own far less than we believe we do. And, our problems are something that no one tries to steal from us, because everyone has plenty of their own to draw from and work at fixing.

But, that doesn't mean that another person's problems are trivial or unimportant. Everyone's importance scale is relative to the trials they've faced in their life. To someone who's face very little hardship, a less-than-perfect grade in school could mean the world is about to end. But that same grade to someone who's faced great loss and adversity would be nothing more than a minor bump in the road. The loss of a beloved pet is a great loss to some, while others may view it as "just" an animal that's died. It's all relative to each of us and our personal circumstances.

So, while our problems are important inside our world, they aren't always important to others in their worlds. And, conversely, we on the outside should be sensitive to others and their problems, even if we don't understand why these problems are so big to others.

It's not always for us to understand, just commiserate and support and not judge. And, sometimes that non-judgmental approach helps us to solve our own big problems.

Labels:

Friday, February 13, 2009

"Let Me Be Myself"

I heard this this morning on my way to work, while sipping on my chai tea latte. Pretty accurately sums up the ongoing struggles and searches within myself.

I guess I just got lost
Bein' someone else
I tried to kill the pain
Nothin' ever helped
I left myself behind
Somewhere along the way
Hopin' to come back around
To find myself someday

Lately I'm so tired of waiting for you
To say that it's ok, but tell me
Please, would you one time
Just let me be myself
So I can shine with my own light
Let me be myself
Would you let me be myself

I'll never find my heart
Behind someone else
I'll never see the light of day
Living in this cell
It's time to make my way
Into the world I knew
Take back all of these times
That I gave in to you

Lately I'm so tired of waiting for you
To say that it's ok, but tell me
Please, would you one time
Let me be myself
So I can shine with my own light

And let me be myself
For a while, if you don't mind
Let me be myself
So I can shine with my own light
Let me be myself

That's all I've ever wanted from this world
Is to let me be me

Please would you one time
Let me be myself
So I can shine with my own light
Let me be myself
Please would you one time
Let me be myself
So I can shine with my own light
Let me be myself
For a while, if you don't mind
Let me be myself
So I can shine with my own light
Let me be myself
Would you one time ... oooh
Let me be myself
Let me be me ...


Songwriters: Arnold, Brad; Harrell, Todd; Henderson, Chris; Roberts, Matt;

Labels:

Friday, January 30, 2009

I melt with you

She actually knows who I am. And, I can't help but assume she loves me, judging by the way her face lights up when she sees me.

I kiss her forehead and wave "bye-bye" every morning, after Mike has secured her in her car seat, and she flashes me that big gummy grin and returns my wave with her own uncoordinated one.

She and I both look forward to when I get home from work so I can feed her. Mike does a great job at it, but she clearly prefers me at mealtime and gets wild with anticipation while I'm preparing her food.

She giggles and smiles at my not-so-perfect renditions of her favorite nursery songs banged out on her toy xylophone. Doesn't matter to her that I'm off key while singing along.

This little person has completely stolen my heart.

Wow ...

Labels:

Monday, January 26, 2009

Just bein' honest ...

I've tried to constructively use all the comments I received with my last blog entry - thank you for the feedback and support! - and took my first step at being true to myself, even though I risked upsetting others with my honesty.

We had a memorial service for Ryan the week after he died so our friends and family, most of whom don't live locally, could attend. At that point, only a week had passed, but it seemed like an eternity for both Mike and myself. Back then, we clung desperately to one another for strength. And, in that moment, it was all we had in our newly shattered world; it felt like it was us against the world.

We both held ourselves together relatively well until Ryan's service started. Then, we both crumbled, but Mike more so than me. I'm not sure why, since I'm the hyper-sensitive one of us, but, I did my best to comfort him during his vulnerable moment and I seemed to be his pillar when he needed it most.

But, while I had my head nestled against my weeping husband's shoulder, my ears were pierced by the sounds of my 14-month-old niece's incessant cries. These weren't just whimpers or whines; she was a few tears shy of an all-out meltdown - in the middle of my baby's memorial service.

Now, I understand that babies cry, but I had silently questioned the appropriateness of a baby attending another baby's memorial service even before we left the house that day. That same morning, while getting dressed for Ryan's service, my niece's crying triggered my milk to come in. So, I stood in my bedroom futilely stifling my tears, while my unused milk for Ryan leaked everywhere. Yeah, what a great moment that was, too.

Sitting in the pew at the funeral chapel, I could feel the back of my neck getting hotter the more my niece's cries went unattended. My sister-in-law, mother-in-law, and Mike's uncle all sat there and did nothing. They did absolutely nothing to quell the cries of a baby who drowned out my baby's last moment of public acknowledgment - the last time anyone would gather to celebrate him.

But, when it had first happened, I truly thought I was being selfish and just needed to reconcile my anger and frustration within myself. But, in the weeks following the service, several of my friends and members of my family asked who the crying baby was at Ryan's service. When I'd tell people it was our niece, I'd receive mixed looks and comments, all hinting that our niece's presence wasn't appropriate given the nature of the service and because she drowned out the majority of the pastor's sermon.

That sickening moment has haunted me practically every day since then. And, because it was Mike's sister's child, it wasn't something I could ever casually introduce into conversation. How does one delicately mutter, "Our niece ruined Ryan's funeral!" But, after receiving so many comments which affirmed my feelings on the situation, I felt it was time to finally tell Mike how his family disappointed me and dishonored Ryan.

After Megan had gone to bed on Friday night, I told Mike that I had something to tell him - something that had been weighing very heavily on my mind for a very long time and since it involved his family, I needed to tell him what was bothering me rather than allowing this to fester any longer.

I explained how gut-wrenching our niece's presence was for me in the first place during our early days of grieving, but I understood that his sister had no alternative but to bring our niece for the memorial service. I went on to explain that I certainly didn't blame our niece for crying through the service's entirety, but that I was disappointed that no one in his family made an attempt at consoling her or even removing her from the chapel.

Mike didn't remember the incident at all and I didn't expect that he would, given his emotional state during the service. I don't think he immediately realized how deeply this all affected me until I could no longer contain my emotion and burst into tears.

He received my news surprisingly well, and then wrapped his warm arms around me and told me he was sorry I had anguished over this for so long. I felt badly for unloading a whopper piece of my broken heart into his lap, but I was glad that I had finally broken my silence and let that demon out of its dark closet.

And, I think he knew that I didn't tell him all of that in an attempt to upset him or ridicule his family. I just wanted to be honest with him about something that affected me so deeply. It was a moment when Ryan's star should have shone brightly and instead it was eclipsed.

I don't know that I necessarily feel "better" about coming clean about this. But, at least I'm not silently shouldering the burden of it.

Labels: , ,

Monday, January 19, 2009

The great pretender

That's the conclusion I've arrived at.

I've spent the better part of the last three years merely pretending I was okay and "better," but I couldn't be further from that.

There's a tremendous amount of guilt that I shoulder - that I still feel this way after grieving for so long. And, especially since I've finally received the sweetest of blessings in the form of Megan. She's saved me from myself in many ways, but she's not the cure-all, end-all as some people would believe. There's still a giant, empty hole in my heart, filled with infinite sadness.

My sadness ebbs and flows. But, most of the time I can't be who I really am. I can't be that desperately sad mother who still longs for her baby boy. I can't be in a somber mood around the masses and instead put on a half-hearted smile to spare them all the angst in my heart.

I've spent the last few months curled up in my shell, where I know I'm safe - where I can be me. Where I don't have to answer the never-ending, "What's wrong?" or "Are you alright?"

I'm tired of pretending I'm someone that everyone else wants me to be.

Labels: ,

Monday, December 01, 2008

The wisdom of Charlie Brown

I've always loved the timeless "Peanuts" cartoons. I could never pinpoint why I liked the comic strip and its lovable characters. I just found it appealing.

Yesterday, I managed to catch A Boy Named Charlie Brown, and I realized that for me, watching Charlie Brown was like looking in a mirror. And, then it hit me.

I'm Charlie Brown.

Even though I've seen that movie - as well as the other "Peanuts" classics - a slew of times, it was the first time that I actually noticed how much I'm like Charlie. The bad luck, the cynicism, the sarcasm, the feelings of inadequacy.

I get it, Chuck. I really get it.

Labels: